Hydrocephalus is a complex and unpredictable condition and parents caring and nurturing a baby or child with hydrocephalus need to prepare for the road ahead with careful education and planning. Whether your baby is diagnosed in utero or after birth the diagnosis of hydrocephalus comes as a shock to any parent.
There certainly are some precautions they need to take such as being aware of the signs of shunt dysfunction.
Raising a child with hydrocephalus. A baby with hydrocephalus has extra cerebrospinal fluid CSF around the brain. But most need more than one surgery and ongoing medical care. An essential aspect to helping children achieve is the commitment of staff to creating a positive and purposeful.
It may be caused by an infection in the mother during. Request PDF Living with a child with hydrocephalus. Today we bring You Nakalema Maimuna narrating the status She goes through while raising her son suffering from Hydrocephalus disease during this period when the country is.
Children with hydrocephalus often have surgery to place a device called a ventriculoperitoneal VP shunt which is simply a tube that runs from the ventricles of the brain where CSF is produced into the peritoneal space abdominal cavity in the torso. We are happy to provide parents a wide number of FREE resources aimed to help children with Cerebral Palsy overcome challenges associated with their condition and are available to speak Monday through Friday 9 AM. It is your job to keep him alive.
A healthcare provider may diagnose this condition during an ultrasound in pregnancy. The journey of raising a child with hydrocephalus may be challenging and were committed to providing information to help you make the best decisions advocate for your child and connect with other parents. You feel like you will need to be extra alert and on the watch for any sign of a shunt malfunction.
Your child needs your care and support. Some children will have more to cope with than others but all as with any child have their individual strengths and weaknesses. A child with hydrocephalus can lead a very normal life.
I presume you are asking whether or not the shunt will affect the ability to have a normal life. Hydrocephalus is an excess amount of cerebrospinal fluid CSF around the brain. This is a rare condition.
A family experience The hydrocephalus determines for the family and the child a chronic situation to be faced where there is the need to. Her parents Candace Corner and Johnny Miller said the biggest challenge of caring for a child with hydrocephalus is the uncertainty that comes with the condition. Congenital hydrocephalus Approximately 1 in every 500 American babies are born with hydrocephalus.
Status of a Single Mother raising Hydrocephalus child During COVID-19 pandemic. Her parents Candace Corner and Johnny Miller said the biggest challenge of caring for a child with hydrocephalus is the uncertainty that comes with the condition. Treatment for hydrocephalus is successful in many children.
Its hard at first. Raising a child with Hydrocephalus Angel was born with Severe Congenital Hydrocephalus via c-section due to her condition. Children with hydrocephalus as with any learning disorder will have varying degrees of difficulty.
The babys head may look larger than normal. Some of the processes that may interrupt normal CSF fluid pathways leading to hydrocephalus include bleeding severe head injuries meningitis and brain tumors. Patients with shunts can and do live very normal and full and productive lives.
Take your child to all doctor visits. What You Need to Know Primary Care Needs of Children with Hydrocephalus. Imagine having such a migraine that incapacitates you then you know how she felt.
When you first find out your baby has hydrocephalus you find yourself willing him to get better to fight through so you can take him home. We also recommend a network of other hydrocephalus parents you can turn to for both information and friendship. To help your child get the best treatment.
Key points about hydrocephalus in children. A sad fact is that Intraventricular Hemorrhage IVH is the leading cause of hydrocephalus in preterm infants and varying levels of IVH are very common in preemies especially extremely preterm babies. Follow all medical recommendations such as taking prescribed medicines.
It can be really hard to focus on the future when you know theres a higher likelihood that everything could be interrupted in an instant. With acquired hydrocephalus a child is born with a normal CSF circulation which is later interrupted. A few common acquired causes are.
If your child is facing challenges associated with hydrocephalus including Cerebral Palsy we welcome you to contact us at 800 692-4453 or through our online form.
